Feeding around clock

Ran out of fingers to poke and some now are poked twice. Blood sugar kept dropping last night.  100 at 9:30 (fed him bedtime snack).  Dropped to 58 at 12:30, gave him a few bites of peanut butter sandwich (so thankful that no more allergies as peanut butter is one of handful of protein source that he would actually eat).  91 at 1:30am.  Dropped to 58 again at 3:30 am.  Doctor asked us to give him things to eat again, so we gave more than what we gave at 12:30am.  At 6:30 am his glucose measured 57.  So it seemed like we have to feed him around the clock to keep his blood sugar at a safe level.  And that's mostly what I did today till 2pm.  Fed breakfast on and off for 2 hours and had last bite at 10am.  At 11:30 his glucose measured 65.  Fed lunch on and off till 1:30pm.  He took a long nap after wards (well, none of us slept well last night).  I went home when Lucas took his nap, spent quality time with Alex running a few errands (and prepare for Lucas's birthday tomorrow!).  They didn't eat anything while I was gone and his blood sugar measured 68 at 7:30pm!  6 hours without food and I thought it would be in 40's.  He is much more alive later today and hopefully that means his episode of low blood sugar has ended.  Surely we will keep watching.

Tonight he will be given dextrous fluid since he need to fast for his lumbar puncture tomorrow (scheduled 12 noon).  Glucose measured 101 at 10pm as I just let him eat his bedtime snack.  I bought quite a few food items trying to add some variety for snacks.  I decide not to rely on hospital food and brought a electrical griddle, a toaster, a slow cooker and a deep fryer (that we use to cook pasta) to hospital.  I ordered a rice cooker with steamer that should arrive quickly.   I hope the new round of chemo won't be too challenging as we had our share of challenges last 10 days. I don't mind spending more time preparing food for Lucas as long as he eats a decent amount.

Lucas will be 3 tomorrow and he will start interim maintenance.  I think that means he will finish chemo when he turns 6.  We finished 3 months and have 3 years ahead of us.  We know there will be bumps and setbacks, but hopefully we will weather through the difficulties fairly smoothly.

I told Alex that mommy felt sorry that I had spent much more time with Lucas.  Alex said he felt sad and angry when I got harsh on him (sometimes just because I got irritated by Lucas but instead vent on Alex)  But Alex said that he would never blame mommy.  I almost cried when he said that.  Alex has really grown up a lot in the past three months.  I really appreciate how sweet and accommodating he is.  He said he wanted to spend a lot of time with his best friend and asked me to guess who that would be. After 4 guesses I got it right.  :)  I try to take Alex out to run errands once a week so we could have some quality mother-son alone time.