Since it has been shown that the seizure last Thursday has no direct association with chemo, the doctors decide that chemo will still be on schedule. Lucas will get another dose of vincristine, together with high dose methotrexate, which would require 3 days of clearing. Lucas has been doing well the past 2 days. He eats very well and is very playful. He even allowed the company of nurse and PCA while we stepped away to get food from cafeteria. Finger poking is still every 4 hours and he doesn't cry at all now with the actual penlet/lancet for the glucose machine. I learned how to use it by doing it on my own fingers. It's going to be part of our life now.
It's great to see Lucas so well today and it's sad to know that he will have another chemo tomorrow and will have huge canker sores in his mouth and don't feel well in general. We just have to remind ourselves that he is not cured yet and the extra medication does more good than evil. It's hard to look ahead to 3 more years of chemo considering what we have experienced the past 3+ weeks. It's in my nature to plan ahead for everything and I really have to try harder to live one day at a time.
I came back home this evening and took my parents and Alex out for grocery shopping. I will have a good night of sleep tonight and get ready for 2-3 hard nights of 1 diaper every 1.5 hours.
Keep fingers crossed that this will be a smooth round! It sure will get better as chemo frequency reduces.
ReplyDeleteSometimes, the beginning is extremely slow and hard to us. But believe me, Xiaoyi, everything will be much easier and better, after the hardest beginning.
ReplyDelete"两军交战勇者胜" Be brave! We know we will win!!!
Sometimes, what really helps is "just do it" and "do not think, plan or worry too much".
All the best wishes to the new round.
加油！Lucas, my bravest boy!!
加油！Xiaoyi, the bravest mom!!!