Started long term maintenance today

ANC was 1350 last Thursday and 1836 today.  Went to clinic today for a chat with doctor, blood drawn for liver panel, and Vincristine.  Will go there 6:30 tomorrow morning for lumbar puncture.  I asked about more frequent check on CBC and liver functions and possibly a check on IGG level.  Our doctor is very good at easing my nerve with credible scientific answers.  So I came home with a CBC in two weeks while most kids will be checked once every four weeks.  And we would decide when to check liver panels again based in the results we get today.

We took Lucas to Costco last Friday -- his first time out since diagnosis!  My cousins arrived Sunday and we were a gang of people going to the clinic today.  Lucas had always asked to eat in the patio area of the hospital cafeteria and his wishes were granted today, eating with seven of his extended family members!  It was a little stressful since my young cousins are like big kids themselves and I felt like I had to take care of them.  But overall we had a good day.