Day 12

Lucas is pleasant for the most part today.  He is tired often and needs a lot of sleep.  He eats 5 meals today, mostly still white rice, shell pasta with chicken broth, and boiled eggs.  He finished 6 egg whites and at least 3 egg yolks today.  We couldn't get him to eat any vegetables or fruits.  Tomorrow we will ask the doctors if we should give him Pedisure or maybe the toddler formula.  He has chills from time to time -- when he complains of cold and shivers uncontrollably.  No fever, having my fingers crossed. The chills could be caused by low white blood count.  It's very considerate for the doctors to schedule the appointment tomorrow -- it is true that after we get home, we now have more questions.

Jianwei went to work this morning and has been working from home even when we were in the hospital.  Alex and I went out for 2.5 hours this afternoon to run some errands and do some grocery shopping.  It was refreshing to walk in fresh snow.  We got Lucas a Shark anatomy book from Costco -- the one that Lucas always wanted but we didn't get it since it looked so fragile.  I am looking into getting him some other toys that he has always wanted.  I do realize that I'm spoiling Lucas in many ways now.  But he is such a good boy that he hasn't taken advantage of this situation by any means.  He only cries when he is hungry or when he is given a shower, gets changed for diaper, or has is teeth flossed and brushed.  I can completely find reasons for all those moments.  I can't stand any of those things when I feel sick.

Tomorrow we might get the bone marrow Cytogenetics result -- which could potentially change the risk factors.  I have so much anxiety every time waiting for such results.  And it's hard to imagine that this is the only beginning.   I feel that if I can weather through this, I can handle anything.  Maybe in five years I will run for senator, or open my own business.  Any other suggestions?  :)